Literacy in Medicine and Education the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of Research Lincoln Memorial University DeBusk College of Osteopathic Medicine Health literacy is a shared function of social and individual factors Individuals health literacy skills and capacities are mediated by their education, culture, and language Potential Intervention
Points Intervention points for improving health literacy Health systems Social marketing Education systems Partnerships Critical to improved health literacy Repeatedly mandated but with minimal funding Rare
Obstacles to Partnership Lack of follow through on Existing science education standards Mandates Must include recommendations for funding Funding must be provided for mandates to be carried out Funding of recommended programs Lack of awareness across fields
Fostering Partnerships Partnerships wanted Adult education programs Adult learners Health systems Practitioners Engage Multiple Fields Health care services should be developed in partnerships with the local community, organizations, and institutions Local Resources Health care institutions
Adult education programs Libraries Community leaders Example Partnerships Demonstration Projects Develop Curricula Train the Trainer Leadership for Community Change Kellogg Foundation Demonstration Project Classroom training Mentoring Networking
Community-based leaders Local organizations Multiple sites Promote crossdiscipline relationships Develop selfcontinuing projects Take action on existing mandates Lobbying for increased funding References 1 Committee on Health Literacy, Board on Neuroscience and Behavioral Health. Health Literacy: A Prescription to End Confusion. L Nielsen-Bohlman, AM Panzer, DA Kindig, Eds. Washington DC: National Academies Press, 2004. http://www.iom.edu/?id=32784
4 Committee on the Future of Rural Health Care, Board on Health Care Services. Quality Through Collaboration: The Future of Rural Health Care. Washington DC: National Academies Press, 2005. http://www.iom.edu/? id=29734 Further Reading A selection of articles relevant to health systems and adult education partnerships to address health literacy
Doak LG, Doak CC, Meade CD. 1996. Strategies to improve cancer education materials. Oncology Nursing Forum. 23(8): 13051312. HHS (U.S. Department of Health and Human Services). 2000. Healthy People 2010: Understanding and Improving Health. Washington, DC: U.S. Department of Health and Human Services. [Online]. Available: http://www.health.gov/healthypeople [accessed: January 15, 2003]. Jacobson E, Degener S, Purcell-Gates V. 2003. Creating Authentic Materials for the Adult Literacy Classroom: A Handbook for Practitioners. Cambridge, MA: World Education Inc. Joint Committee on National Health Education Standards. 1995. National Health Education Standards:
Achieving Health Literacy. Atlanta, GA: American Cancer Society. Matthews TL, Sewell JC. 2002. State Officials Guide to Health Literacy. Lexington, KY: The Council of State Governments. Morse L. 2002. Improving Health Literacy: An Educational Response to a Public Health Problem. Presentation given at a workshop of the Institute of Medicine Committee on Health Literacy. December 11, 2002, Washington, DC Murphy PW, Davis TC, Mayeaux EJ, Sentell T, Arnold C, Rebouche C. 1996. Teaching nutrition education in adult learning centers: Linking literacy, health care, and the community. Journal of Community Health
Nursing. 13(3): 149158. NRC (National Research Council). 1996. National Science Education Standards. Washington, DC: National Academy Press. Pateman B, Grunbaum JA, Kann L. 1999. Voices from the fieldA qualitative analysis of classroom, school, district, and state health education policies and programs. Journal of School Health. 69(7): 258263. Rudd RE. 2002. A maturing partnership. Focus on Basics: Connecting Research and Practice. 5(3).
Rudd RE, Moeykens BA. 1999. Adult educators perceptions of health issues and topics in adult basic education. NCSALL Report #8. Cambridge, MA: National Center for the Study of Adult Learning and Literacy. Members of the IOM Committee on Health Literacy Dr. Dyanne Affonso, Executive Administrative Specialist, Dept. of Pharmacy, University of Hawaii Hilo, 60 Nowelo St., Ste 101, Hilo, HI 96720 [email protected] (808) 443-5900 Dr. Eric Chudler, Eric H. Chudler, Director of Education and Outreach, University of Washington Engineered Biomaterials (UWEB), Department of Bioengineering, Bioengineering, BOX 355061, University of WashingtonSeattle
WashingtonSeattle,, WA 98195-5061 http://faculty.washington.edu/chudler/ehc.html (206) 616-6899 [email protected] Dr. Marilyn Gaston, Assistant Surgeon General of the United States, Retired, http://www.leadwithexperience.org/prize/finalists/gaston-porter.cfm [email protected] Dr. David Kindig, Committee Chair, Professor Professor of Preventive Medicine and Director of the Wisconsin Network for Health Policy Research, Department of Preventive Medicine, 760 WARF Building, 610 N. Walnut St., Madison, Wisconsin 53705-2397 http://www.medsch.wisc.edu/adminmed/faculty/dkindig.htm [email protected] (608) 263-4886
Dr. Cathy Meade, Director, Education Program, Leader, Cancer, Culture, and Literacy Institute, Moffit Cancer Center, Univerity of South Florida, H. Lee Moffitt Cancer Center & Research Institute, 12902 Magnolia Drive, Tampa, FL 33612 [email protected] (813) 745-6730 Dr. Lynn Nielsen, Committee Director, Assistant Professor of Physiology & Director of Research, DeBusk College of Osteopathic Medicine, Lincoln Memorial University, 6965 Cumberland Gap Parkway Harrogate, Tennessee 37752 http:// www.lmunet.edu/DCOM/faculty/nielsen.htm 423-869-7120 [email protected] continued next page Members of the IOM Committee on Health Literacy, continued
Allison Panzer, Committee Staff, University of Rochester Medical Center, [email protected] Dr. Ruth Parker, Professor of Medicine, Dept. of General Medicine, Emory School of Med http:// med.emory.edu/faculty/profile_bio.cfm?id=846 med.emory.edu/faculty/profile_bio.cfm?id=846 [email protected] (404) 778-1639 Dr. Victoria Purcall-Gates, Canada Research Chair in Early Childhood Literacy, Faculty of Education, Department of Language & Literacy, 2125 Main Mall,304 B Scarfe Hall, University of British Columbia, Vancouver, B.C., Canada V6T 1Z4 http://educ.ubc.ca/faculty/vpurcell-gates/ [email protected] 604.822.0105
Irv Rootman, Centre for Community Health Promotion Research, Box 3060 STN CSC, Victoria B.C. V8W 3R4 http://web.uvic.ca/chpc/whoweare/team.htm [email protected] (250) 472-4102 Dr. Victoria PurcallGates, Canada Research Chair in Early Childhood Literacy, Faculty of Education, Department of Language & Literacy, 2125 Main Mall,304 B Scarfe Hall, University of British Columbia, Vancouver, B.C., Canada V6T 1Z4 http://educ.ubc.ca/faculty/vpurcell-gates/ [email protected] 604.822.0105 Irv Rootman, Centre for Community Health Promotion Research, Box 3060 STN CSC, Victoria B.C. V8W 3R4 http://web.uvic.ca/chpc/whoweare/team.htm [email protected] (250) 472-4102 Dr. Rima Rudd, Senior Lecturer on Society, Human Development, and Health, Department of Society, Human Development, and Health, Health, Harvard. 677 Huntington Avenue, Kresge Building 7th Floor, Boston, MA 02115
http://www.hsph.harvard.edu/faculty/rima-rudd/index.html [email protected] 617-432-3753 Dr. Susan Scrimshaw, President, Simmons College, 300 The Fenwaym Boston, MA 02115 http://www.simmons.edu/overview/president/index.shtml [email protected] 617-521-2070 Bill Smith, Senior Scientist and Director, Social Change Group, Academy for Educational Development, 1825 Connecticut Ave., NW, Washington, D.C. 20009-5721 http://www.aed.org/Experts/smithw.cfm http://www.aed.org/Experts/smithw.cfm [email protected] 202-884-8000 Members of the IOM Committee on Health Literacy, continued
Dr. Rima Rudd, Senior Lecturer on Society, Human Development, and Health, Department of Society, Human Development, and Health, Harvard. 677 Huntington Avenue, Kresge Building 7th Floor, Boston, MA 02115 http://www.hsph.harvard.edu/faculty/rima-rudd/index.html [email protected] 617-432-3753 Dr. Susan Scrimshaw, President, Simmons College, 300 The Fenwaym Boston, MA 02115 http://www.simmons.edu/overview/president/index.shtml [email protected] 617-521-2070 Bill Smith, Senior Scientist and Director, Social Change Group, Academy for Educational Development, 1825 Connecticut Ave., NW, Washington, D.C. 20009-5721 http://www.aed.org/Experts/smithw.cfm [email protected] 202-884-8000
Contracted Contributors to the IOM Health Literacy Report Dr. Terry Davis, Contributor, Professor of Medicine and Pediatrics , Director of Behavioral Science Section, Feist-Weiller Cancer Center, LSU Health Sciences Center-Shreveport, 1501 Kings Highway, Shreveport, Louisiana 71130-3932 http://www.fwcconline.org/db/doctorbio.aspx?doctorID=129 [email protected] (318) 6755813 Dr. David Howard, Assistant Professor, Department of Health Policy and Management, Rollins School of Public Health Room 610, Emory University, 1518 Clifton Road NE Atlanta, GA 30322http://www.sph.emory.edu/~dhhowar/ 30322http://www.sph.emory.edu/~dhhowar/ [email protected] 404-727-3907
Dr. Dean Schillinger, University of California San Francisco, San Francisco General Hospital, 1001 Potrero Avenue, San Francisco, CA 94110, Box 1364, Bldg 10 http://dgim.ucsf.edu/sfgh/Faculty/schillinger.html (415) 206-8940 [email protected] Barry Weiss, Contributor, Professor , Department of Family and Community Medicine, University of Arizona College of Medicine, 1501 N. Campbell Avenue, PO Box 245017, Tucson, Arizona 85724 http://www.fcm.arizona.edu/index.cfm/1,149,320,0,html/Barry-Weiss (520) 626-4555
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